Blair’s story is important because it is, all too often, the real, much messier story of disability: trying, sometimes succeeding, sometimes failing, sometimes having to know when to stop, having to know when you can’t.
A Love Letter to Community Care
That’s the point of community care –– to be there for each other when these larger systems fail us. To not let anyone fall through the cracks.
The Business of Being Busy
I worry they’ll see that my “busy” is so much less than their definition of busy, and they’ll judge me for it. They’ll think I’m worth less.
A Decade of Disease
I’m not grateful for what I’ve been through, but I’m working on being less angry at the universe and less angry at my body.
Notes From an Underachieving Body
if you feel worn out from the arduous task that is trying to live your life in a body that keeps failing you, you aren’t alone.
Down the rabbit hole.
When a friend asks you how long you usually have to wait this type of thing out, you falter. Because usually, it lasts a few days. But once, it consumed an entire year of your life.
Your Story is Yours Alone.
It’s important that we as patients understand what we stand for, what change we want to advocate for, and how to best do that.
The Confidence Trap
When it comes to yoga, or dating, or making new friends, I’m much more hesitant to take big swings than I ever used to be.
The Power of Shared Experience
When I hear a friend with Crohn’s describing their struggle, it brings up those emotions that are hard to feel on behalf of myself.
When #VoteOrDie gets literal.
If you’re someone who, up to this point, has found it easier to stick it out on the sidelines, consider this me, officially tagging you in to the game that is politics.
On being "Sick."
I’ve always wanted to be the good girl, and in sickness, that has translated to a desire to be “the good patient,” an ideal that this book has made me realize is impossible to attain –– because it doesn’t actually exist.
Mind Games
The idea of losing governance over my own thoughts and feelings was a shock that has left me reeling.
The patriarchy is killing us –– but literally.
The insidious prevalence in which women are disbelieved by the medical symptom is deadly, and it should be of immediate concern to any female-identifying person with a pulse.
When your brain is the "shame" lady from Game of Thrones.
The harder pain to swallow was the voice in my head that just kept saying, "why can't you be normal?"
Behind-The-Scenes of IBD
Happy World IBD Day to my fellow Crohn's & Colitis patients, who are out there every day making the hard way look easy.
The Cost of Being Sick is Too Damn High (or, why I moved across the country)
I went from being a type-A control freak who loved lists and never missed a homework assignment to someone who couldn't even control the wild machinations of her own body.
My Immune System is Broken.
March is autoimmune disease awareness month! Here's what you need to know.
Bring on the cake – today is my diagnosis anniversary!
How far I've come from the 18-year old who thought she could ignore this thing until it went away.
Being Your Own Best Advocate, Even When it's Hard.
Struggling with mental health does not necessarily mean your physical symptoms aren't real.
My Body is Basically an Old iPhone Battery.
While I appreciate that this post-technology world we're living in leaves pretty much all of my peers stressed and tired by the end of a work week, there's a difference between fatigue and being tired.